living with a lifelong health condition and calls for others to respond.
Welcome to our REDRESS community engagement and involvement (CEI) webpage where you can stay up to date with all our CEI activities.
Please click here to see a blog about why CEI is important to REDRESS and how it informs our work.
REDRESS defines CEI as “the meaningful, respectful, and fit-for purpose involvement of a range of community members in one or more aspects of the research project.”
Participation of people affected by severe stigmatising skin diseases (SSSD) is at the heart of REDRESS. By taking a person centred approach that prioritises community engagement we ensure that affected persons and other often unheard voices have opportunity for meaningful and equal participation in all our programme activities. This includes involving them as active participants in making decisions about research study design and the development and implementation of interventions that seek to strengthen health systems to provide care for people affected by SSSDs.
Within REDRESS we work with a number of key communities to achieve meaningful CEI and have identified five initial priority areas for community engagement which are pictured below:
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1. Establishing community advisory boards within each implementation county and at national level
2. Establishing a Ministry of Health technical advisory board which includes key stakeholders from relevant divisions within the MoH
3. Involving people affected, and other community actors as peer researchers
4. Using participatory methods to elevate and listen to community voices
5. Sharing learning with other NTD actors and the general public in Liberia and beyond
We hope you enjoy exploring the webpage and finding out more about community engagement within REDRESS. Please click on our interactive icons below to explore some of our CEI knowledge products.
Photovoice Booklets
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Community Engagement Videos
REDRESS Colleague Shahreen Chowdhury
Introducing REDRESS
REDRESS colleagues and those affected by severe stigmatising skin diseases introduce the project
Medicine, Children, and Skin Disease: A moral journey
REDRESS's Dr Laura Dean discusses the stigma and burden of skin disease and what we can do about it as part of the Pint of Science public engagement series
Community Health Worker (CHW) Central Webinar
REDRESS co-researchers discuss their experiences of conducting the REDRESS photovoice study in Liberia
Supporting the Comprehensive Fight against Skin NTDs: Gender and Mental Health
REDRESS UK and Liberia project leads and researchers explain how REDRESS supports the comprehensive Flight against Skin NTDs with a focus on gender and mental health. Video created for ANESVAD workshop.
World NTD Day 2022: Reducing the Burden of Severe Stigmatising Skin Diseases in Liberia
REDRESS colleagues discuss how the project is working to reduce the burden of severe stigmatising skin diseases (SSSDs) in Liberia and the importance of engaging those affected by SSSDs and their communities.
Health Systems Global Conference 2022- Presentation by India Hotopf
Pandemic Portraits: A Photovoice Study on Disability & Covid-19 - Co-researcher Commentary
Disability advocates, Heylove Robert Mark & Boakai Abu Nyehn Jr. of the National Union of organisations of the disabled (NUOD) discuss their experiences of working on the Pandemic portraits project.
Podcasts
In this episode, The CCS team hear from Dr Rugema Lawrence from the University of Rwanda and Dr Julian Eaton from the London School of Hygiene and Tropical Medicine and CBM Global Disability and Inclusion. Together they discuss the links between stigma, discrimination, mental wellbeing and chronic health conditions including Neglected Tropical Diseases (NTDs), how these issues are currently being addressed with communities and the importance of ensuring mental health is part of an essential care package.
In this episode, The CCS team hear from Dr.Steven Watiti who works for Mildmay Uganda, a leading HIV and AIDS service organisation, about living and aging with HIV and AIDS. Steven shares his story of family life, courage, loss, survival, learning, and advocacy. He speaks about the importance of mental health support and social capital when
In this episode we hear from Emmanuel Zazay who is a peer researcher in the REDRESS programme and is affected by Buruli Ulcer, a neglected tropical disease. He shares with us the value of learning new skills, through becoming a co-researcher, which has helped him better connect with his community and contribute to the improvement of medical and psychosocial services for people living with NTDs.
In this episode, the guests and hosts discuss the importance of using local dialect, and being a trusted member of the community, especially when talking about mental health and providing counselling to people affected by chronic health conditions.
CEI Blog Series
What does Community Engagement and Involvement (CEI) mean to REDRESS?
REDRESS is launching our new community engagement webpage, where you can stay up to date with our community engagement and involvement activities. In this blog we introduce more about CEI, why it matters to REDRESS and how it informs our work.
Remembering John Brimah
On World NTD and World Leprosy Day we remember and celebrate the life of John Brimah. John Saah Brimah played a pivotal role in the Reducing the Burden of Severe Stigmatising Skin Disease in Liberia and through the (REDRESS) project. He was the REDRESS co-investigator and patient advocate and was also head of the REDRESS Community Advisory Board
International Day of Women and Girls in Science: Reflections and Advice from Liberian REDRESS Team Colleagues
I sat down with REDRESS colleagues Hannah Berrien, Wede Tate and Colleen Parker to learn more about their journey in science and global health research and delivery and their reflections and advice for women and girls interested in a career in this area
Baseline Blog Series: Qualitative Reflections from Grand Gedeh, Lofa, Margibi Counties, Liberia
REDRESS started its baseline activities in Lofa, Margibi and Grand Gedeh, the three intervention counties of REDRESS. The baseline captured experiences related to health-seeking and participation in the community, relationships and perceptions of various stakeholders before we implement the intervention so that we can evaluate any changes over time.
Posters
Prize-winning poster by REDRESS research fellows for NIHR Global Health Forum 2020
Poster by REDRESS research fellows, delivered by Hannah Berrian at NIHR Global Health Forum 2021
Poster by India Hotopf, delivered at Health Systems Global HSR conference 2022
Exploring Wellbeing Among People Affected by Skin Diseases in Liberia- presented by Rachel Johnstone